Sarah Helton

Research project: How do children with severe learning disabilities and profound and multiple learning disabilities communicate grief? How do they communicate their questions, concerns and thoughts about grief?

Abstract

Research aims:

  • To investigate how children with SLD and PLMD express grief
  • To explore what helps children with SLD and PLMD to communicate their grief

Research objectives:

1.    To investigate how bereaved and grieving children with SLD or PMLD communicate their grief to adults who support them at home and school.

2.    To investigate how children with SLD or PMLD communicate their questions, concerns, and thoughts about grief.

3.    To explore approaches and resources for supporting bereaved and grieving children with SLD or PMLD that have been used by adults supporting them at home and school.

4.    To explore the views of adults supporting these children (at home and school) on the merits of different approaches and resources.

  • Research degree: PhD
  • Title of project: How do children with severe learning disabilities and profound and multiple learning disabilities communicate grief? How do they communicate their questions, concerns and thoughts about grief?
  • Research supervisor: Professor Irene Tuffrey-Wijne
  • Other research supervisor: Professor Jayne Price

Biography

I have worked in the Special Educational Needs/Disabilities (SEND) field for 25 years (Deputy Head, Assistant Head, Teacher, Local Authority Education Officer & Educational Publisher).

I am now an author, trainer & consultant in child bereavement, specialising in the needs of bereaved children with SEND. I carry out this work as BackPocketTeacher www.backpocketteacher.co.uk

I have written/designed the following books & resources -

  • A Special Kind of Grief - The complete guide for supporting bereavement & loss in special schools (& other SEND settings)
  • Remembering Lucy - A children's story book about loss & grief in a special school
  • A Jumble of Knotted Thoughts - A sensory story to support bereavement and grief
  • Bereavement & Loss Widgit Symbol Resources
  • We All Grieve (for Winston's Wish)
  • Good Grief Toys ® A set of 45 multi-functional wooden pieces allowing children to explore all forms of grief

Areas of research interest

  • Learning Disabilities/LD/Special Educational Needs/SEND
  • Bereavement, Grief and Loss
  • Children and young people with learning disabilities
  • Supporting the voices of individuals with LD/SEND
  • Inclusive research
  • Profound and multiple learning disabilities - PMLD
  • Children with life limiting and life threatening conditions
  • Augmentative and Alternative Communication
  • Special education and special schools

Qualifications

  • BEd Primary Education - Plymouth University
  • MEd Special Education - Auburn University, USA

Funding or awards received

  • Full Studentship

Publications

  • A Special Kind of Grief - The complete guide for supporting bereavement and loss in special schools (& other SEND settings)
  • Remembering Lucy - A children's story book about loss and grief in a special school
  • A Jumble of Knotted Thoughts - A sensory story to support bereavement and grief
  • We All Grieve - A booklet that I wrote for the child bereavement charity Winston's Wish
  • Good Grief Toys ® A set of 45 multi-functional wooden pieces allowing children to explore all forms of grief

Further details available here - https://backpocketteacher.co.uk

I have written for various journals and articles. You can find links to these articles here - www.backpocketteacher.co.uk/support